Who We Are:
Mississippi Metabolics Foundation (MMF) is a 501(c)(3) nonprofit, nonpartisan organization dedicated to supporting families of Mississippi who live with rare genetic metabolic disorders/inborn errors of metabolism.
Mississippi Metabolics Foundation (MMF) was founded to raise awareness, educate, and provide support to those living or caring for someone with genetic metabolic disorders/inborn errors of metabolism (IEM). We advocate for the continued expansion and implementation of Newborn Screening Programs and access to available resources for caregivers/patients. MMF promotes and supports further advancements in legislation, research, trials and studies, therapies, targeted treatments, and eventual cures for metabolic disorders, IEM’s, and all rare genetic diseases. We will increase the community involvement in Mississippi for rare genetic metabolic disorders and help families navigate their rare disease journey.
How We Started:
Hi! I am Shannah Hudson, mom to Emmalyn age 11, who has Glutaric Aciduria/Acidemia Type 1 (GA-1). I recently founded Mississippi Metabolics Foundation (MMF), a registered 501(c)(3) nonprofit organization to advocate for all patients in Mississippi who live with rare diseases, specifically metabolic disorders. I was selected as a parent advocate leader for Mississippi to represent the rare disease patient community and have been involved with several organizations in advocacy efforts, including National Organization for Rare Disorders (NORD), NORD’s MS Rare Action Network (RAN), Global Genes as a RARE Foundation Alliance Member, Illumina, Inc. as a Rare Genetic Disease Patient Ambassador, Southeast Regional Genetics Network (SERN/SERGG) as the MS Consumer Alliance Advocate, Organic Acidemia Association (OAA) parent supporter and fellow advocate, and The Everylife Foundation’s Community Congress as a Foundation Advocate. I established Mississippi Metabolics Foundation to support the many parents and children I have met through my networking and rare disease journey and also to represent our metabolic patient community in advocacy.