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Children’s of Mississippi patient family advocates for rare disease researchEmmalyn Hudson, a Children’s of Mississippi patient with a rare genetic condition, and her family were among advocates for legislation creating the Mississippi Rare Diseases Advisory Council at UMMC. The council will increase awareness of rare diseases and make public health recommendations.

A Momentous Moment in MississippiGlobal Genes asked Global Advocacy Alliance members to share their successes - whether it is meeting an organizational goal, kicking off a campaign or event, conducting great work in their community, participating at a summit, or collaborating with another organization. See what Mississippi Metabolics Foundation is celebrating!

RareVoice Awards 2022 Wrap Up - EveryLife Foundation for Rare Diseases

Rare Disease Legislative Advocates Announces 2022 RareVoice Award Recipients - EveryLife Foundation for Rare DiseasesRare Disease Legislative Advocates (RDLA), a program of the EveryLife Foundation for Rare Diseases (ELF), announced the recipients of the 2022 RareVoice Awards for individuals or organizations whose public policy […]

RareVoice Awards 2022 - RareVoice Awards Finalists - EveryLife Foundation for Rare Diseases

Leaving An Impact - Mississippi StateEmmalyn Hudson becomes a brand-new Bulldog.

RareVoice Awards 2023 - RareVoice Awards Finalists - EveryLife Foundation for Rare Diseases

Escape from Reality - EveryLife Foundation for Rare DiseasesEmmalyn Hudson

Earlier this month, the EveryLife Foundation for Rare Diseases in partnership with Ultragenyx celebrated Rare Family Day in Novato, California. Rare... | By Rare ArtistFacebookEarlier this month, the EveryLife Foundation for Rare Diseases in partnership with Ultragenyx celebrated Rare Family Day in Novato, California. Rare...

RDLA Team - EveryLife Foundation for Rare Diseases

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